Center for Rare
Diseases

Swiss Rare Disease Registry

The Swiss Rare Disease Registry (SRDR) is a national registry. All patients living in Switzerland with a rare disease diagnosis that is not cancer are to be included. The registry will lead to a better understanding of the extent and frequency of rare diseases in Switzerland. The long-term goal is to improve the care of patients living with rare diseases.

 

The SRDR aims to become a central point of contact for researchers. This will help patients in Switzerland who wish to participate in national and international clinical studies.

Patient data is treated strictly in accordance with the requirements of the Data Protection Act.

The SRDR is being set up at the Institute for Social and Preventive Medicine of the University of Bern.